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Research Proposal

This proposal aims to investigate the impact of celebrity HIV/AIDS disclosures on societal attitudes and policies. By analyzing how celebrities influence social and policy change, the study seeks to understand the potential for leveraging their reach for broader societal benefits. The research will focus on uncovering insights into effective strategies for utilizing celebrity influence to advance crucial issues like HIV/AIDS awareness and policy reform.

Celebrity Disclosures

A Pathway to Progressive AIDS Healthcare Reform

Retrieved from San Diego Union Tribune Archives

Introduction

            Throughout history, celebrities have been valorized and depicted as modern-day heroes. Their status and publicity often result in people seeking to emulate their actions and decisions, whether it’s adopting their lifestyle or promoting a cause. These “heroes” exemplify the values with which audiences seek to identify (Aley & Levine, 2022). Their influence extends beyond just entertainment, as they are able to shape attitudes towards things such as health behaviors, including exercise, diet, and wellbeing. The phenomenon of “information shocks” explains how celebrities can have a major and prolonged effect on public behaviors (Cardazzi et al, 2023). The HIV/AIDS epidemic in the late 1900s encompassed several progressive movements with a large impact from organizations and activists. While unsung, a much more familiar association to HIV/AIDS activism for many people is their relationship with celebrities. For many people, the reality and seriousness of the virus hit close to home when they realized someone they idolize is just as vulnerable (Clarke, 2006). Celebrities span countless fields, and as such it is difficult to establish or quantify a potential general trend in the impact of their disclosures. Previous studies by researchers like Kalichman, Hunter, and Clark have indeed demonstrated that celebrities wield influence across various aspects of people’s lives. However, while their impact on factors such as career aspirations and work ethics has been extensively studied, there’s a notable gap in understanding their influence on health behaviors. This gap underscores the necessity of investigating the impact of celebrity disclosures on health behaviors, making this research imperative. The objective of this research is to see the extent to which celebrity disclosures during the HIV/AIDS epidemic impacted on the mortality and testing of HIV/AIDS and the subsequent effects on health behaviors and advancements in progressive healthcare policy, as well as future applications of such established phenomena.

Background

            The majority of the select few studies done on the impact of celebrity illness disclosures on health behaviors and policy have largely focused on basketball star Magic Johnson’s diagnosis of HIV/AIDS. These studies have indicated that there has been a positive effect on both stigmatization surrounding the disease and the awareness that subsequently led to improved health behaviors and a greater pressure from the public for more research and treatment options (Cardazzi et al, 2023). The media’s portrayal of his diagnosis glorified him as an American hero, deflecting attention from scrutinizing the LGBTQ community. Magic Johnson’s disclosure helped in straying away such negative associations and helped in showing how the disease could affect anyone. It dispelled the notion that HIV/AIDS only impacted individuals from impoverished backgrounds and lower social classes, instead highlighting that even powerful, affluent, and famous celebrities could be affected. Juanne Clarke argues that the depiction of HIV/AIDS-positive celebrities as heroic figures actually dramatically reduced the stigma surrounding the virus, as this portrayal shifted the narrative of AIDS away from explicit homophobia to one focused on heterosexuality (Clarke, 2006). Kalichman and Hunter conducted an experiment that showed that, including possible other factors, Magic Johnson’s disclosure of resulted in raised interest and concern regarding HIV/AIDS. This included a large increase in both how often it came up in conversation and the number of people being tested for the illness (Kalichman & Hunter, 1992). Another instance of celebrity disclosures impacting research and policy are Freddie Mercury, a well-known artist, and Rock Hudson, whose close relationship with President Ronald Reagan brought greater attention to the epidemic (Clarke et al, 1985). These studies establish findings that can be applicable to other celebrities and their influence on HIV/AIDS health behaviors, as well as other diseases that have been studied less. Moreover, these studies provide examples of methods and approaches that can quantify such relationships.

Methods

Aley, M. R., & Levine, K. J. (2022). Popular culture at work: how emerging adults’ favorite        celebrity can influence future career aspirations and work ethic. Atlantic Journal of    Communication30(4), 419–434. https://doi-org.ccny-            proxy1.libr.ccny.cuny.edu/10.1080/15456870.2021.1936527

            This journal article investigates the parasocial relationships that exist between celebrities and the general public, as well as the phenomenon of regular people feeling a sense of      connection to them. The source cites two studies examining the potential role of    celebrities on influencing career aspirations and work ethics of consumers, while also            drawing parallels to the influence they have on health behaviors. The study supports the                        need for my area of research, explaining how there have been few studies that examine     the larger implications of celebrity influence on health behaviors and associated criteria.

Cardazzi, A., Martin, J. C., & Rodriguez, Z. (2023). Information shocks and celebrity exposure: The effect of “Magic” Johnson on AIDS diagnoses and mortality in the U.S. Health    Economics32(9), 2047–2079. https://doi.org/10.1002/hec.4712

            This study explores the impact of celebrity exposure on public health outcomes,                particularly the case of Earvin “Magic” Johnson’s HIV diagnosis and its subsequent effect on AIDS diagnoses and mortality rates in the U.S. The article addresses the             phenomenon of “information shocks”, which is when high-profile individuals influence    public behavior. This research is particularly useful as it uses statistical methods to            establish a correlation between Johnson’s public announcement in 1991 and a significant increase in AIDS diagnoses and a decrease in mortality in following years. However, the        source is holistic in that it addresses the limitations in long-term effectiveness of such information shocks.

Clarke, G., Dutka, E., & Kraft, B. (1985). Rock: A Courageous Disclosure. TIME Magazine126(5), 51.

            This source is an article published in TIME Magazine in 1985, which discusses the public            disclosure of Rock Hudson’s AIDS diagnosis. As an American household name, Rock   Hudson was seen as the epitome of a masculine man aside from his closeted             homosexuality. The authors argue that his disclosure brought an unprecedented attention and sympathy to the disease, which ultimately prompted increased funding for research       due to his close relationship with President Ronald Reagan. This article is very valuable   for understanding the cultural context of the AIDS epidemic in the mid-1980s.

Clarke, J. N. (2006). Homophobia out of the closet in the media portrayal of HIV/AIDS 1991,

            1996 and 2001: Celebrity, heterosexism and the silent victims. Critical Public       Health16(4), 317–330.

https://doi-org.central.ezproxy.cuny.edu/10.1080/09581590601091620

            In this article, the authors examine the media portrayal of HIV/AIDS in Canadian mainstream media between 1991 and 2001. They focus on the role of celebrity and the           often-overlooked victims of AIDS, with a particular emphasis on heterosexual celebrities while neglecting the LGTBQ+ community and other marginalized groups. The source is      particularly useful in quantifying the intersection of media, celebrity culture, and public      health while simultaneously providing insight into the societal attitudes surrounding         HIV/AIDS.

Kalichman, S. C., & Hunter, T. L. (1992). The Disclosure of Celebrity HIV Infection: Its Effects on Public Attitudes. American Journal of Public Health82(10), 1374–1376.

https://doi-org.central.ezproxy.cuny.edu/10.2105/AJPH.82.10.1374

            This article investigates the impact and societal response to high profile HIV disclosures, such as those of Magic Johnson and Rock Hudson. The study reveals that these disclosures significantly influenced public perceptions and quantifies to the increased       awareness and understanding of the disease, made evident by how much more AIDS and concern for it came up in conversation. The authors argue that celebrity disclosures serve                     as powerful tools for public health education and advocacy, however, also caution that     the celebrity-focused narrative may also overshadow the experiences of non-celebrity      individuals living with AIDS.

Waxman, O. B. (2018). Freddie Mercury Didn’t Want to Be a “Poster Boy” for AIDS — But He and Other Celebrities Played a Key Role in Its History. Time.Com, N.PAG.

            This article addresses another high-profile celebrity whose AIDS disclosure had a major   impact on societal attitudes and public health. Freddie Mercury, despite his reluctance to    become a “poster boy” for the disease, brought much-needed attention to the epidemic.                He and other celebrities used their platforms to challenge stigmas and advocate for     research funding, which was also able to sway global public health policy to invest in        treatments and preventative education for HIV/AIDS. His death in 1991 coincided with    Magic Johnson’s disclosure which combined for a snowballing effect to mobilize support     for research and treatment methods.

Outcomes

            The evidence presented by these various sources demonstrates that there is a quantifiable relationship between celebrity disclosures and an influence on health behaviors and subsequent healthcare policy. With phenomena such as information shocks, celebrities can influence public behavior from the mid- to long-term. Celebrities are often valorized and portrayed as heroes in media, and this image has shown measured change in spreading awareness, increasing testing for diseases, and combating stigmatization. Furthermore, the sources indicate a larger need for research, as few studies have been done in regard to the broader implications of celebrity influence on the general public. By establishing a trend for this relationship, more can be done to capitalize on the impact of disclosures such as Magic Johnson’s, Freddie Mercury’s, and Rock Hudson’s to pave the way for progressive healthcare reform.

Works Cited

Aley, M. R., & Levine, K. J. (2022). Popular culture at work: how emerging adults’ favorite        celebrity can influence future career aspirations and work ethic. Atlantic Journal of    Communication30(4), 419–434. https://doi-org.ccny-            proxy1.libr.ccny.cuny.edu/10.1080/15456870.2021.1936527

Cardazzi, A., Martin, J. C., & Rodriguez, Z. (2023). Information shocks and celebrity exposure: The effect of “Magic” Johnson on AIDS diagnoses and mortality in the U.S. Health

Clarke, G., Dutka, E., & Kraft, B. (1985). Rock: A Courageous Disclosure. TIME Magazine126(5), 51.

Clarke, J. N. (2006). Homophobia out of the closet in the media portrayal of HIV/AIDS 1991,

            1996 and 2001: Celebrity, heterosexism and the silent victims. Critical Public       Health16(4), 317–330.

https://doi-org.central.ezproxy.cuny.edu/10.1080/09581590601091620

Kalichman, S. C., & Hunter, T. L. (1992). The Disclosure of Celebrity HIV Infection: Its Effects on Public Attitudes. American Journal of Public Health82(10), 1374–1376.

https://doi-org.central.ezproxy.cuny.edu/10.2105/AJPH.82.10.1374

San Diego Union Tribune. (1991, November 7). Front page. Retrieved from San Diego     Union Tribune newspaper archives.

Waxman, O. B. (2018). Freddie Mercury Didn’t Want to Be a “Poster Boy” for AIDS — But He and Other Celebrities Played a Key Role in Its History. Time.Com, N.PAG.